National Organization for Rare Disorders
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The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.
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Peter L. Saltonstall
President And CEO Emeritus And Special Advisor
Peter L. Saltonstall
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Edward Neilan
Chief Medical & Scientific Officer
Pamela Gavin
Executive Vice President
Prashant Goel
VP, Information Technology
Alexa Moore
VP, Development
Heidi Ross
VP, Policy & Regulatory Affairs
Norine Schwarzchild
VP, Human Resources
Jill L. Pollander
VP, Patient Services
Neeta Kotecha
VP, Finance
Rebecca Aune
Director, Education Programs
Kelly Esperias
Chief Strategy & Operations Officer
Christopher J. Schaber
Corporate Council Member
Jennifer Knapp
Oregon Volunteer State Ambassador
Aimee Guarnieri
Nevada Rare Action Network Ambassador
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