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Global Genes

1 follower

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Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates, and clinical partners.

Industries

Non Profit

Headquarters

Aliso Viejo, United States

Employees

11-50

Links

Org chart

Charlene Son Rigby
CEO

Charlene Son Rigby

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Barry Weber
Data Protection Officer & Chief Information Security Officer
Pam Rattananont
VP, Development & Marketing
Kathy O’Connor
Senior Director, Corporate Engagement
Maria Della Rocca
Senior Director, Patient Services
Karmen Trzupek
Senior Director of Scientific Programs
VW
Victoria Weiss
Senior Director, Finance
Teneasha Washington
Diversity, Equity & Inclusion Lead
Nicole Boice
Chief Mission Officer

Teams

+25

Advisory and Council Roles

28 members

Marketing and Communications

3 members

+1

Patient Services and Support

4 members

+2

Research and Data Management

5 members

Community Engagement and Support

3 members

Leadership Team

2 members

Offices

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