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Betsy Bogard works in the rare disease community to enable development of transformative therapies. Her younger brother Jud was born with a rare genetic disease, inspiring her to make a difference for patients and families facing debilitating conditions. She is currently the head of program and alliance management for Ensoma, an emerging gene therapy company. She also chairs the Research Committee for the International FOP Association, a non-profit patient organization for the rare disease fibrodysplasia ossificans progressiva (FOP). Ms. Bogard has over 20 years of experience in biotechnology in areas that include portfolio and alliance management, program leadership, real world evidence, registries, health economics and patient community engagement. She has a master’s degree in health policy and management from the Harvard School of Public Health. Ms. Bogard lives in Somerville, Massachusetts with her two sons.