EveryLife Foundation for Rare Diseases
0 followers
‌
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation.
Industries
Headquarters
Employees
Links
Org chart
Emil Kakkis
President
Emil Kakkis
Collapse
Jamie Sullivan
Vice President Of Policy
Annie Kennedy
Chief Of Policy, Advocacy, And Patient Engagement
Ted Brasfield
Vice President Of Alliance Development
Brenda Colmenares Murzi
Director Of Communications
Alyssa Terwall
Senior Director Of Operations And Events
Megan Pinegar
Chief Operating Officer
Baillie McGowan
Associate Director Of Policy And Research
Merrill Friedman
Board Member
Michael Pearlmutter
Chief Executive Officer
