Debra - The Butterfly Skin Charity
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We are the butterfly skin charity. Uniting for change for everyone living with epidermolysis bullosa (EB), caring for someone with EB, or bereaved by EB. (Registered Charity Number 20021726, Revenue Number CHY 8703).
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Jimmy Fearon
Chief Executive Officer
Jimmy Fearon
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Alejandra Livschitz
Head Of Strategic Communications And Supporter Engagement
Deirdre Callis
Head Of Family Support
Louise Delahunty
Head Of Philanthropy
Pauline Williamson
Head Of Finance
Sinead Hickey
Head Of Research, Policy And Advocacy
Mark Hyland
(secretary)
Michael O Rourke
(chairperson)
Bobby Healy
Board Member
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