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debra

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The Dystrophic Epidermolysis Bullosa Research Association of America (Debra of America) is the only U.S. nonprofit providing all-inclusive support to the EB Community, through funding research for a cure and by providing free programs and services for those with EB.

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Brett Kopelan
Executive Director

Brett Kopelan

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Jason Kelly
Director, Supporter Led Events
Mike Powers
Finance Director
Aigerim Saparova-Smith
Digital Marketing Director
Jenna Kubeck
Special Events Director
Heather Fullmer
Community Engagement Director